By Jesse Jost
I recently took two of my sons and my youngest brother, Judah, into town to see a movie and do some shopping. While we were in Princess Auto, my astute 10 year-old John-Michael noticed there were complimentary doughnuts by the front door. He and Judah, who have working pancreases, blissfully devoured the treats without an issue. My 5 year-old son, Elijah, whose immune system destroyed his pancreas, and is now a Type 1 diabetic, also wanted a doughnut. His last shot of insulin wasn’t enough to match his breakfast carbs, and his blood sugar was already way too high, so I had to say no. My poor little boy started sobbing on the spot, “I wish I didn’t have diabetes.” Oh, that hurt to hear those words.
We are so grateful Elijah is alive after we almost lost him this summer to complications from his undiagnosed diabetes, but there are times it is hard to watch our sweet boy have to deal with all the insulin shots, finger pokes, and food restrictions.
I told Elijah to go get a doughnut and wrap it up in a napkin and that he could have part of it for dessert after lunch when I could give him extra insulin for it. He cheered up at this prospect and the solution worked fine.
All the unique challenges we face with Elijah have made me think a lot about fairness. It doesn’t seem fair that Elijah has to be so carb conscious at this age, or have to deal with 6 or 7 injections a day just to stay alive. As a parent, self-pity is tempting when I can’t sleep because I am concerned Elijah’s blood sugar will drop and he will slip into a fatal low.
It used to be nice to just pack up and leave the house without having the stress of making sure we have his blood sugar monitoring equipment, insulin, glucagon kit, juice and granola bars for lows, plus making sure it’s all in a well-insulated container so it’s not ruined by too much heat or cold.
It was so easy before to put out a bedtime snack and not worry about the carb count, or let the kids at the cold cereal in the morning, without having to read labels or weigh and measure everything. It’s easy to be just a little jealous of the uncomplicated eating habits of non-T1D families. Continue reading…